Help Pass Federal Legislation

I know our collective political attention is focused on the presidential election at the moment, but the day to day acts of government and citizenship also deserve our attention. The Lyme community is mobilizing once again to try to pass legislation, which is very much needed. Please help. In the past, it has successfully passed legislation …

My experience with Mold in the home

If you have Lyme disease then you’ve probably asked the question at some point whether or not mold in your home is contributing to your health problems.  It’s an extremely difficult question to answer.  Early on in my illness, and before being diagnosed with Lyme, I blamed all of my problems on mold, mostly because …

New Goals for the Blog

If you've visited me recently at gotlyme.wordpress.com you may have noticed that we have a bit of a new look (and that we can now also be found at pghlyme.org). This blog was slowing down, and I made the decision to help revitalize it by joining its effort with that of the Pittsburgh Lyme Support Group, …

Lyme Research Progresses

As a scientist with Lyme disease, the early years of my illness were distinguished by a frustrating lack of information in the published literature. I had to really dig to find relevant literature, and what literature there was seemed minimalistic, narrow, and or contradictory with either my own experience or other articles. The doctors most skilled at treating …

Slipping between the cracks

In the last week, I have met or heard about three different cases of younger individuals who either died or were very ill with a combination of diseases that cause neurological and physical symptoms. I invariably have the same reaction in these cases - I think of Lyme disease and wonder whether they were properly …

Re-Post: Ask your senators to co-sponsor Lyme disease bill (S. 1503)

Senators Kelly Ayotte (R-NH) and Richard Blumenthal (D-CT) have introduced the bipartisan Lyme and Tick-Borne Disease Prevention, Education and Research Act of 2015 (S. 1503). (from LymeDisease.org) This is a NATIONAL bill, folks, which means it potentially subsumes the need to pass these on a state by state basis and has a big impact. It would help countless people …

Life without major relapses

It's been about 2 years now since I had a major relapse (meaning weeks and weeks of more severe symptoms). This is huge -- it means that I am willing to take risks like signing up for a work trip, taking on something larger at work, and being more responsible for things at home without a …

Strain-based immunity?

Strain-based immunity? This news article highlights results from a study exploring whether people exposed to a particular strain of Lyme disease are immune to that strain for any length of time. The news article gives a nice layman's summary of the research article. The main result is that it seems statistically more likely that the …

A Training Plateau

We've reached a training plateau. It seems as if Gryffin isn't really learning anything new right now. Perhaps I'm just unmotivated, as I'm feeling outstandingly well. Or perhaps it's the constant time it takes. Or perhaps it's the fact that he's mastered the impressive stuff. Now we need to work on basics and small additions. …

Lyme Support Gr…

Lyme Support Group September 29 October 6 November3 December 1 6 - 9 pm Christ Lutheran Church 910 North Avenue Millvale, PA 15209 pghlyme@gmail.com A new Lyme Support group is getting started in the area (about time, I think the old Etna one I have posted about before is now defunct). Hope this is of …