In the last week, I have met or heard about three different cases of younger individuals who either died or were very ill with a combination of diseases that cause neurological and physical symptoms. I invariably have the same reaction in these cases - I think of Lyme disease and wonder whether they were properly … Continue reading Slipping between the cracks
It's been about 2 years now since I had a major relapse (meaning weeks and weeks of more severe symptoms). This is huge -- it means that I am willing to take risks like signing up for a work trip, taking on something larger at work, and being more responsible for things at home without a … Continue reading Life without major relapses
Or maybe I should call this YAR (yet another relapse). Who's counting, anyway? This one (maybe) was triggered by international travel and possibly stress. I'm about a week in, and as usual it's both new and the same. Started with night sweats (while still on the trip), transitioned to nausea (new) and dizziness and now … Continue reading Relapse #n
Being out of treatment, I don't have things to post that often anymore. Or perhaps I'm just too busy. Having gotten back from my sabbatical I've been thrown headlong into a very difficult semester. And when I don't feel well I have nothing to fall back on because I have no wiggle room left while … Continue reading Repeat Relapses
Although on sabbatical, I'm going to check in with a brief series of posts this month and next. I am in the midst of a relapse (severe night sweats since early january, more recently fatigue, out of breath, headaches and dizziness). After more than two weeks of symptoms that are getting in the way of … Continue reading Back :(.
I'm starting to feel like chronic illness just keeps going and going and going ... I know that's the definition of chronic, but I keep getting my hopes up. I suppose the right thing to focus on is that life goes on too. And for the most part, I do. But this is my space … Continue reading The energizer bunny
Things have been going incredibly well since I stopped my medication in October. However, I've always thought of myself as "in remission" and tried to act accordingly (protecting at least some of my healthiest habits). Despite that, the call of a job I love, the needs of my children, and time have slowly eroded these … Continue reading Fear of falling