If you've visited me recently at gotlyme.wordpress.com you may have noticed that we have a bit of a new look (and that we can now also be found at pghlyme.org). This blog was slowing down, and I made the decision to help revitalize it by joining its effort with that of the Pittsburgh Lyme Support Group,… Continue reading New Goals for the Blog
In the last week, I have met or heard about three different cases of younger individuals who either died or were very ill with a combination of diseases that cause neurological and physical symptoms. I invariably have the same reaction in these cases - I think of Lyme disease and wonder whether they were properly… Continue reading Slipping between the cracks
Lyme Support Group September 29 October 6 November3 December 1 6 - 9 pm Christ Lutheran Church 910 North Avenue Millvale, PA 15209 firstname.lastname@example.org A new Lyme Support group is getting started in the area (about time, I think the old Etna one I have posted about before is now defunct). Hope this is of… Continue reading Lyme Support Gr…
This was not my children's lyme doc, but he is one of only a small number (2 or 3 that I know of) on the east coast who sees kids under 12, and a hero to many families with Lyme. Please help support him if you're able. You can donate here. Even a small amount… Continue reading Urgent need for donations
I've posted before about the importance of finding support; attended support groups; recommended mailing lists. I'm one of those people who naturally seeks mentorship and support wherever I am as a way of coping with whatever I'm going through. But recently I've also realized just how lucky I am to find support in everyday places… Continue reading Support #2
For those of you not on the CALDA (California Lyme Disease Association) mailing list, I wanted to share the message they just sent me. I joined their list because they are extremely well organized and I often keep an eye on their site because it's full of great information. It's inspiring to me to see… Continue reading Repost: Thanksgiving in the Lyme World
Hi folks, I was contacted by a fellow Lymie who's in town briefly and wants to meet up with other Pittsburgh Lymies. She's arranging a meeting at the Southside Starbucks (1400 E. Carson St). If you're interested, come join us 2pm Wednesday. I'll be there for the first hour or so. -- added after the… Continue reading In-person meet up?