I know our collective political attention is focused on the presidential election at the moment, but the day to day acts of government and citizenship also deserve our attention. The Lyme community is mobilizing once again to try to pass legislation, which is very much needed. Please help. In the past, it has successfully passed legislation … Continue reading Help Pass Federal Legislation
If you've visited me recently at gotlyme.wordpress.com you may have noticed that we have a bit of a new look (and that we can now also be found at pghlyme.org). This blog was slowing down, and I made the decision to help revitalize it by joining its effort with that of the Pittsburgh Lyme Support Group, … Continue reading New Goals for the Blog
As a scientist with Lyme disease, the early years of my illness were distinguished by a frustrating lack of information in the published literature. I had to really dig to find relevant literature, and what literature there was seemed minimalistic, narrow, and or contradictory with either my own experience or other articles. The doctors most skilled at treating … Continue reading Lyme Research Progresses
In the last week, I have met or heard about three different cases of younger individuals who either died or were very ill with a combination of diseases that cause neurological and physical symptoms. I invariably have the same reaction in these cases - I think of Lyme disease and wonder whether they were properly … Continue reading Slipping between the cracks
Senators Kelly Ayotte (R-NH) and Richard Blumenthal (D-CT) have introduced the bipartisan Lyme and Tick-Borne Disease Prevention, Education and Research Act of 2015 (S. 1503). (from LymeDisease.org) This is a NATIONAL bill, folks, which means it potentially subsumes the need to pass these on a state by state basis and has a big impact. It would help countless people … Continue reading Re-Post: Ask your senators to co-sponsor Lyme disease bill (S. 1503)
It's been about 2 years now since I had a major relapse (meaning weeks and weeks of more severe symptoms). This is huge -- it means that I am willing to take risks like signing up for a work trip, taking on something larger at work, and being more responsible for things at home without a … Continue reading Life without major relapses
Strain-based immunity? This news article highlights results from a study exploring whether people exposed to a particular strain of Lyme disease are immune to that strain for any length of time. The news article gives a nice layman's summary of the research article. The main result is that it seems statistically more likely that the … Continue reading Strain-based immunity?