This was not my children's lyme doc, but he is one of only a small number (2 or 3 that I know of) on the east coast who sees kids under 12, and a hero to many families with Lyme. Please help support him if you're able. You can donate here. Even a small amount … Continue reading Urgent need for donations
Being out of treatment, I don't have things to post that often anymore. Or perhaps I'm just too busy. Having gotten back from my sabbatical I've been thrown headlong into a very difficult semester. And when I don't feel well I have nothing to fall back on because I have no wiggle room left while … Continue reading Repeat Relapses
I spent the day traveling to my new bio-medicine doctor (and napping on the train in both directions). I didn't really know what to expect -- he's not google-able, and I had very little information from the person who recommended him about how he works or what he does. Just following my gut, and enjoying … Continue reading High-tech alternative medicine
Although on sabbatical, I'm going to check in with a brief series of posts this month and next. I am in the midst of a relapse (severe night sweats since early january, more recently fatigue, out of breath, headaches and dizziness). After more than two weeks of symptoms that are getting in the way of … Continue reading Back :(.
I am reading an ethnography  right now written by a woman who was misdiagnosed with fibromalgia. She discusses the way in which her doctors' view of her and her symptoms defined (and destroyed) 8 months of her life. In the end, she is "saved" by a doctor who argues for the role of culture, … Continue reading Biology or Behavior?
Things have been going incredibly well since I stopped my medication in October. However, I've always thought of myself as "in remission" and tried to act accordingly (protecting at least some of my healthiest habits). Despite that, the call of a job I love, the needs of my children, and time have slowly eroded these … Continue reading Fear of falling
My daughter is four, and she is a puzzle to me. She has always seemed so strong, so robust, so determined, so healthy (unlike my son). Yet she also shared the repeated summer time flu and frequent sickness of my son up through January of 2009, after which her health was excellent. Despite this, to … Continue reading So sensitive…