activism, diagnosis, thoughts

Slipping between the cracks

In the last week, I have met or heard about three different cases of younger individuals who either died or were very ill with a combination of diseases that cause neurological and physical symptoms. I invariably have the same reaction in these cases - I think of Lyme disease and wonder whether they were properly… Continue reading Slipping between the cracks

treatment

Off antibiotics!

I can't believe it's been over a month since I last wrote in ... I certainly haven't forgotten about this blog or having Lyme disease, but as an academic the beginning of the semester always rolls over me in waves leaving little time to step back and reflect. Fall is especially bad because there are… Continue reading Off antibiotics!

my story, symptoms

Running the numbers (March 2009)

I expect this will become an (approximately) monthly post as long as I am still in treatment. I have entered another month's worth of numbers into my stats program and analyzed them. This month is of note because I switched meds half way through --Penicillin was begun March 13th. At that time, Zithromax, Mepron, and… Continue reading Running the numbers (March 2009)

symptoms, thoughts

Avoiding regression in chronic illness

Although I can't say yet whether I have a chronic illness (I certainly hope not), I do know that I've been affected by lyme for over a year now, and in that period I've had at least 2 relapses (both before treatment). Now I'm attempting to give my body the space to get completely better.… Continue reading Avoiding regression in chronic illness

diagnosis, symptoms

More diagnosis … which stage was I in?

Lyme disease is multi-faceted because the lyme spirochete can attack different systems in the body. Typically, the longer someone is infected, the further it progresses, though there is no guarantee as to the order in which different types of symptoms will occur. In my case, because there was no known tick bite or acute onset… Continue reading More diagnosis … which stage was I in?