my story, thoughts

Life without major relapses

It's been about 2 years now since I had a major relapse (meaning weeks and weeks of more severe symptoms). This is huge -- it means that I am willing to take risks like signing up for a work trip, taking on something larger at work, and being more responsible for things at home without a… Continue reading Life without major relapses

thoughts

The four stages of relapse

I've decided it's time for an (admittedly tongue in cheek) exploration of my emotional reaction to relapse. Tongue in cheek not only because I'm comparing to a very well known model normally called "The five stages of grief" but also because the evidence suggests that that model is a poor representation of what really happens to… Continue reading The four stages of relapse

symptoms, thoughts

Relapse #n

Or maybe I should call this YAR (yet another relapse). Who's counting, anyway? This one (maybe) was triggered by international travel and possibly stress. I'm about a week in, and as usual it's both new and the same. Started with night sweats (while still on the trip), transitioned to nausea (new) and dizziness and now… Continue reading Relapse #n

doctors-conversations, my story, symptoms, treatment

Back :(.

Although on sabbatical, I'm going to check in with a brief series of posts this month and next. I am in the midst of a relapse (severe night sweats since early january, more recently fatigue, out of breath, headaches and dizziness). After more than two weeks of symptoms that are getting in the way of… Continue reading Back :(.