In the last week, I have met or heard about three different cases of younger individuals who either died or were very ill with a combination of diseases that cause neurological and physical symptoms. I invariably have the same reaction in these cases - I think of Lyme disease and wonder whether they were properly … Continue reading Slipping between the cracks
Although on sabbatical, I'm going to check in with a brief series of posts this month and next. I am in the midst of a relapse (severe night sweats since early january, more recently fatigue, out of breath, headaches and dizziness). After more than two weeks of symptoms that are getting in the way of … Continue reading Back :(.
I'm starting to feel like chronic illness just keeps going and going and going ... I know that's the definition of chronic, but I keep getting my hopes up. I suppose the right thing to focus on is that life goes on too. And for the most part, I do. But this is my space … Continue reading The energizer bunny
The last two days have been trying. Yesterday, a flare up started while I was at work and quickly got so bad that I could not keep my eyes open. Luckily I was already sitting on the comfortable couch of a good friend at the time. I was able to enter that state of waking … Continue reading The meaning of strength
My "bad periods" are becoming a regular companion in my experience of Lyme disease. I don't mean the overarching up and down of my fatigue, headaches, and other symptoms, but the specific moments when I suddenly realize that something is wrong and my body's demands overwhelm anything else. At this point they've become so common … Continue reading Flares
It's been a while since I posted anything on this blog ... when things are good I'm just less motivated --there's so many other things I want to do, and when things are bad, I suddenly don't have the time. That's certainly been the pattern in the last month... Almost immediately after my last update, … Continue reading When it rains it pours
This is a radical topic change for a moment, but I want to give a quick update to folks about how the past few months have been. The more distance I have from last September/October the more aware I am of just how sick I was in that period. I didn't write much about how … Continue reading Update and mold remediation