In the last week, I have met or heard about three different cases of younger individuals who either died or were very ill with a combination of diseases that cause neurological and physical symptoms. I invariably have the same reaction in these cases - I think of Lyme disease and wonder whether they were properly… Continue reading Slipping between the cracks
Although on sabbatical, I'm going to check in with a brief series of posts this month and next. I am in the midst of a relapse (severe night sweats since early january, more recently fatigue, out of breath, headaches and dizziness). After more than two weeks of symptoms that are getting in the way of… Continue reading Back :(.
I'm starting to feel like chronic illness just keeps going and going and going ... I know that's the definition of chronic, but I keep getting my hopes up. I suppose the right thing to focus on is that life goes on too. And for the most part, I do. But this is my space… Continue reading The energizer bunny
The last two days have been trying. Yesterday, a flare up started while I was at work and quickly got so bad that I could not keep my eyes open. Luckily I was already sitting on the comfortable couch of a good friend at the time. I was able to enter that state of waking… Continue reading The meaning of strength
My "bad periods" are becoming a regular companion in my experience of Lyme disease. I don't mean the overarching up and down of my fatigue, headaches, and other symptoms, but the specific moments when I suddenly realize that something is wrong and my body's demands overwhelm anything else. At this point they've become so common… Continue reading Flares
It's been a while since I posted anything on this blog ... when things are good I'm just less motivated --there's so many other things I want to do, and when things are bad, I suddenly don't have the time. That's certainly been the pattern in the last month... Almost immediately after my last update,… Continue reading When it rains it pours
This is a radical topic change for a moment, but I want to give a quick update to folks about how the past few months have been. The more distance I have from last September/October the more aware I am of just how sick I was in that period. I didn't write much about how… Continue reading Update and mold remediation