my story, thoughts

When it rains it pours

It’s been a while since I posted anything on this blog … when things are good I’m just less motivated –there’s so many other things I want to do, and when things are bad, I suddenly don’t have the time. That’s certainly been the pattern in the last month…

Almost immediately after my last update, I started a major downslide (the beginning of it is described in that post). The whole experience was highly hormonal, with wild emotion changes, extreme fatigue, heat, cold, and so on (and, interestingly, coincided with my period). I ended up leaving early to see my doctor just to get away from it all, and spent a lovely weekend with my 1 month old niece in Philly before going to NY. I arrived at the doctor’s office right around the end of it and was given a new antibiotic (Ceftin).

Continue reading “When it rains it pours”

my story, symptoms

A catalogue of typical symptoms

Over the course of the next two months, I had had a litany of symptoms. In the first ten days of June, I had what appeared to be two separate colds with runny nose and sore throat. At some point after that, I had flu-like symptoms twice within a 10 day period, and began to experience a strange pain in my jaw that felt sort of like the muscles were stiff. This happened once in mid-June and again in early August. My husband had at one point developed a stiff jaw due to an allergic reaction to antibiotics, and it went away fairly quickly. None of his doctors had seemed too worried about it, and consequently I didn’t worry too much about my jaw symptoms.

Also in early August, I developed a rash on the back of my neck that I now know is a typical and recognizable sign that someone may be infected with Lyme. My husband noticed and took a picture (below). It didn’t itch at all and I assumed I had just scratched myself, never looked at the picture and didn’t take it very seriously.


My back pain and swollen lymph nodes continued as well, and in early August I finally decided it was time to go back to my MD/homeopath for advice as I knew that ongoing swelling in the lymph nodes was not normal and 6+ months of that seemed like long enough that maybe I should be concerned.

She continued to try to help boost my immune system, but my general impression was that whatever was wrong was not serious enough to warrant testing and that with more rest and the right supplements my immune system would start working properly. As did my parents (both in medicine), my doctors seemed to think that it was my lifestyle and past issues such as my mold exposure that was causing my problems, as opposed to a serious illness.

my story, symptoms

Flu-like symptoms brought on by late nights

Right after the fatigue returned, I developed flu-like symptoms, probably also brought on by the late nights causing my Lyme disease to progress. However, with two young children who don’t sleep through the night attending school and catching colds and the flu themselves, it was naturally assumed that the events reported below were simply a case of an immune system weakened by lack of sleep allowing me to catch everything I came into contact with.

April 6th … started to be nauseous on 4/5, worse in morning, with pain and weakness and muscle pain in back. took homeopathic ipecac about 4 times, nausea is reduced but other symptoms continue

April 7th … had diarrhea all night, but have been well all day, with almost no symptoms besides weakness from lack of food. ate, biked, etc. lymph nodes still slightly swollen

April 10th … Had cold symptoms. Seems to have cleared up by evening. Getting more sleep would probably help a lot.