Life without major relapses

It's been about 2 years now since I had a major relapse (meaning weeks and weeks of more severe symptoms). This is huge -- it means that I am willing to take risks like signing up for a work trip, taking on something larger at work, and being more responsible for things at home without a … Continue reading Life without major relapses

Disability Accommodations?

I have spent the past two weeks exploring what it means to work with Lyme disease from a new perspective. I've blogged before about why I think it's valuable to view Lyme disease through the lense of disability. I've also blogged extensively about work and Lyme disease. However, I've never really put the two together. … Continue reading Disability Accommodations?

How does all that misinformation online affect Lymies?

I have been working toward this for two years now, and I can finally talk about the work we've done with the help of many volunteers. My paper, "Competing Online Viewpoints and Models of Chronic Illness" will be published at the premier venue in my field, the 2011 conference on Computer Human Interaction. For those of you … Continue reading How does all that misinformation online affect Lymies?

Managing Lyme’s Unpredictability

One of the most frustrating things about this illness is the unpredictable nature of its flare-ups. Even without flare-ups, the illness is unpredictable: one month I am dizzy each time I stand up, almost to the point of blacking out, the next I have to wear sunglasses and a hat indoors if the lights are … Continue reading Managing Lyme’s Unpredictability

Up and down, up and down

It's been a while since I made an entry in this blog, though I often think of things I'd like to write about. A big reason for this is that I've been trying very hard to return to my working life (somewhat unsuccessfully). As a result I cut out from my day everything that isn't … Continue reading Up and down, up and down