treatment

Off antibiotics!

I can’t believe it’s been over a month since I last wrote in … I certainly haven’t forgotten about this blog or having Lyme disease, but as an academic the beginning of the semester always rolls over me in waves leaving little time to step back and reflect. Fall is especially bad because there are many conferences to travel to (I just returned from a trip) and I always submit to an important conference in my field around mid September (just before my trip this year).

It’s hard to believe how far I’ve come in a year, but as I roll through my second year since diagnosis I often find myself reflecting on where I’ve been. Two years ago I was desperately seeking a diagnosis, unsure what was happening to me, and floundering at work as I attempted to sprint through what felt like molasses. A year ago I had finally come to terms with the prospect of long term antibiotics, only to descend into one of my worst periods ever. I will never forget my attempts to submit to that same conference deadline, which consisted of hours and hours of painful attempts to look sideways at my screen as I edited the most mindless parts of my papers interspersed with occasional moments of clarity in which I would sprint away from anything that could stop me from writing with an over the shoulder request to my husband to take over if kids were involved, and dive in to do as much as possible before the pain and cognitive dysfunction descended again. In contrast, leading up to this September’s deadline, I had only brief mild headaches and not even every day, with no other major cognitive impairments. Continue reading “Off antibiotics!”

my story, symptoms, treatment

Running the Numbers (June/July, 2009)

I have entered another two month’s worth of numbers into my stats program and analyzed them. I had my best month ever in June, and it is easily visible in the chart included below.  I had many days with only one or two symptoms, and felt much better, than I have since I became ill. The mean number of symptoms per day was 4 in both of these months, as opposed to 8 or more in past months.

Continue reading “Running the Numbers (June/July, 2009)”

my story, symptoms, treatment

Running the Numbers (Apr/May 2009)

I have entered another two month’s worth of numbers into my stats program and analyzed them. Of note is the fact that I was apparently hyperthyroid in Feb/March (and maybe before that) but went into remission in April. I’m gaining back my weight now, which apparently was caused at least partly by that.

I’ve created a new way of visualizing my data. The next image summarizes major symptoms since symptom onset (Fall ’06) through August ’08. Major events (such as the mold bloom) are marked at the bottom.

Continue reading “Running the Numbers (Apr/May 2009)”

my story, symptoms

Running the numbers (March 2009)

I expect this will become an (approximately) monthly post as long as I am still in treatment. I have entered another month’s worth of numbers into my stats program and analyzed them. This month is of note because I switched meds half way through –Penicillin was begun March 13th. At that time, Zithromax, Mepron, and Ceftin were stopped. I also lost 12 lbs sometime between when I last weighed myself (maybe over christmas?) and now, probably due in part to Ceftin causing me to have about 4 bowel movements a day.

The news continues to be good. The charts below illustrate the change in various symptoms from last month to this (click on them to see close ups)

Continue reading “Running the numbers (March 2009)”