In the last week, I have met or heard about three different cases of younger individuals who either died or were very ill with a combination of diseases that cause neurological and physical symptoms. I invariably have the same reaction in these cases - I think of Lyme disease and wonder whether they were properly… Continue reading Slipping between the cracks
I am in the process of researching a potential new treatment for my Lyme disease, and this post is a place for me to summarize what I am finding. As I describe elswhere in my blog<link>, I think it is important to consider any treatment plan from multiple perspectives. In this case my research includes the mechanism by which… Continue reading Low Dose Naltrexone: A new treatment option?
Or maybe I should call this YAR (yet another relapse). Who's counting, anyway? This one (maybe) was triggered by international travel and possibly stress. I'm about a week in, and as usual it's both new and the same. Started with night sweats (while still on the trip), transitioned to nausea (new) and dizziness and now… Continue reading Relapse #n
I'm starting to feel like chronic illness just keeps going and going and going ... I know that's the definition of chronic, but I keep getting my hopes up. I suppose the right thing to focus on is that life goes on too. And for the most part, I do. But this is my space… Continue reading The energizer bunny
It's funny how sometimes you don't truly percieve something until it's gone. That's how it is with my pain. Last Tuesday or Wednesday my pain finally lifted, and I realized how much pain I'd been in for the past few weeks. Suddenly I was much more understanding of myself-in-pain. Since then I've been pain free… Continue reading Pain free moments
It's been a while since I made an entry in this blog, though I often think of things I'd like to write about. A big reason for this is that I've been trying very hard to return to my working life (somewhat unsuccessfully). As a result I cut out from my day everything that isn't… Continue reading Up and down, up and down
Today has been difficult, no sign in sight of an end to the bad week. My back and neck hurt, my nerves feel hyper sensitive there and the only relief is when my husband touches my back. Also, my head has been hurting for hours, and neither a nap nor ibuprofin helped my head or… Continue reading Fighting to stay positive