my story, thoughts

Life without major relapses

It’s been about 2 years now since I had a major relapse (meaning weeks and weeks of more severe symptoms). This is huge — it means that I am willing to take risks like signing up for a work trip, taking on something larger at work, and being more responsible for things at home without a backup.

Most recently it meant I could say yes to being on a program committee, a work event that I have not been able to participate in much over the last few years because I have restricted my travel to (mostly) no plane flights, and (mostly) no time zone changes. In other words, it means I can live my life a little bit more like I did before lyme, before 2006. But does it mean I am cured?  Continue reading “Life without major relapses”

treatment

Another study weighs in on post-lyme/chronic lyme

I’m always on the look out for more research that helps to resolve the controversial question as to whether lyme can re-occur. One test of this is whether antibiotics help with post-lyme symptoms (since they would presumably not help if those symptoms are caused exclusively by an auto-immune reaction). I haven’t read this full paper, but from the abstract, it appears that antibiotics did have an impact on symptoms for some folks with post-lyme but it only lasted 12-24 weeks. Note that many many individuals were screened out in searching for the people qualified to participate in this study.

 A randomized, placebo-controlled trial of repeated IV antibiotic therapy for Lyme encephalopathy