Lyme Research Progresses

As a scientist with Lyme disease, the early years of my illness were distinguished by a frustrating lack of information in the published literature. I had to really dig to find relevant literature, and what literature there was seemed minimalistic, narrow, and or contradictory with either my own experience or other articles. The doctors most skilled at treating …

Lyme Support Gr…

Lyme Support Group September 29 October 6 November3 December 1 6 - 9 pm Christ Lutheran Church 910 North Avenue Millvale, PA 15209 pghlyme@gmail.com A new Lyme Support group is getting started in the area (about time, I think the old Etna one I have posted about before is now defunct). Hope this is of …

Relapse #n

Or maybe I should call this YAR (yet another relapse). Who's counting, anyway? This one (maybe) was triggered by international travel and possibly stress. I'm about a week in, and as usual it's both new and the same. Started with night sweats (while still on the trip), transitioned to nausea (new) and dizziness and now …

Disability Accommodations?

I have spent the past two weeks exploring what it means to work with Lyme disease from a new perspective. I've blogged before about why I think it's valuable to view Lyme disease through the lense of disability. I've also blogged extensively about work and Lyme disease. However, I've never really put the two together. …

Repost: Thanksgiving in the Lyme World

For those of you not on the CALDA (California Lyme Disease Association) mailing list, I wanted to share the message they just sent me. I joined their list because they are extremely well organized and I often keep an eye on their site because it's full of great information. It's inspiring to me to see …

Assistive Technology — don’t forget to use it!

It seems silly in retrospect, but one of the things that took me longest to integrate into my daily experience with Lyme disease was simple devices that would increase my mobility, strength, memory, and so on. Many of these things are inexpensive or even free, and all of them helped to reduce the impact of …

New hope for Chronic Fatigue patients

When you live in the nether world of questioned diagnosis, you spend a lot of time wondering if perhaps those doctors who say the problem is in your head, your lifestyle, and your diet are right. In my case, I was lucky to have a variable enough illness that I was constantly reminded that I …

Assistive Technologies

Having Lyme disease is a debilitating experience, on that many of us agree. Many of us also believe passionately that it is possible to improve our lot or even cure ourselves. As a result, we often focus much of our energy on finding the right doctor, the right medication, the right path forward. I certainly …

Finding Support

Last night I made my first visit to the local lyme support group (you can find information about the time and location of my group by searching for the word "lyme" on this page, but note that they don't meet in Dec/Jan/Feb the one I visited is defunct, but a new one started, or find …