research

Lyme Research Progresses

As a scientist with Lyme disease, the early years of my illness were distinguished by a frustrating lack of information in the published literature. I had to really dig to find relevant literature, and what literature there was seemed minimalistic, narrow, and or contradictory with either my own experience or other articles. The doctors most skilled at treating… Continue reading Lyme Research Progresses

links, research, thoughts

Strain-based immunity?

Strain-based immunity? This news article highlights results from a study exploring whether people exposed to a particular strain of Lyme disease are immune to that strain for any length of time. The news article gives a nice layman's summary of the research article. The main result is that it seems statistically more likely that the… Continue reading Strain-based immunity?

links, research

Evidence of a distinct post-treatment condition in humans makes Discover’s top 100

Evidence of a distinct post-treatment condition in humans makes Discover's top 100  “At least now we know we’re not just speculating about the differences between chronic fatigue syndrome and post-treatment Lyme.” ----- EDIT: I posted this before reading the original article (sorry!) and misunderstood the Discover article. There are "biomarkers" that persist post treatment, but… Continue reading Evidence of a distinct post-treatment condition in humans makes Discover’s top 100

links, research, treatment

Strong Evidence of Lyme Persistence in Monkeys

A recent study (2012) proved the persistence of Bb (Lyme) in Rhesus Monkeys. The researchers waited 27 weeks after infection in their first experiment, which is all I'll discuss here, and then tested with multiple methods. The Eliza declined in treated animals, which might be interpreted to say treatment worked. However, in fact, spirochetal DNA… Continue reading Strong Evidence of Lyme Persistence in Monkeys

research, thoughts

Disability Accommodations?

I have spent the past two weeks exploring what it means to work with Lyme disease from a new perspective. I've blogged before about why I think it's valuable to view Lyme disease through the lense of disability. I've also blogged extensively about work and Lyme disease. However, I've never really put the two together.… Continue reading Disability Accommodations?

activism, research

How does all that misinformation online affect Lymies?

I have been working toward this for two years now, and I can finally talk about the work we've done with the help of many volunteers. My paper, "Competing Online Viewpoints and Models of Chronic Illness" will be published at the premier venue in my field, the 2011 conference on Computer Human Interaction. For those of you… Continue reading How does all that misinformation online affect Lymies?