I've posted before about the importance of finding support; attended support groups; recommended mailing lists. I'm one of those people who naturally seeks mentorship and support wherever I am as a way of coping with whatever I'm going through. But recently I've also realized just how lucky I am to find support in everyday places… Continue reading Support #2
--- update --- After posting the information below I discovered an additional article from 2000 by Stricker & Winger. They evaluated 73 patients with chronic lyme disease. Six of those patients were tested repeatedly over 4 months. They found significant differences between those with chronic lyme, and various comparison groups. This constitutes (I believe) better… Continue reading CD 57
Somebody asked me a few days ago, how I am able to live with and accept the impact of Lyme disease on my life. The resulting conversation helped me achieve a new understanding of what it means to live with a chronic condition. Because Lyme disease is potentially curable, I find myself living with constant… Continue reading Liberating Constraints
It seems silly in retrospect, but one of the things that took me longest to integrate into my daily experience with Lyme disease was simple devices that would increase my mobility, strength, memory, and so on. Many of these things are inexpensive or even free, and all of them helped to reduce the impact of… Continue reading Assistive Technology — don’t forget to use it!
I noticed when I was pregnant that there were suddenly a lot of pregnant people around. Funny how, once I had my first child, I saw many fewer pregnant ladies, but a whole lot of moms and dads with strollers. Now that I have lyme disease it seems that everyone knows someone who has a… Continue reading Advice from someone on the other side…
A PIC line allows repeated doses of intravenous (IV) fluid to be administered without having to repeatedly stick a needle in a vein. This is helpful when one has been told to administer IV antibiotics daily for six weeks. That much I knew when I arrived at the hospital at 9am on Tuesday morning. What… Continue reading All about PIC lines