activism, diagnosis, thoughts

Slipping between the cracks

In the last week, I have met or heard about three different cases of younger individuals who either died or were very ill with a combination of diseases that cause neurological and physical symptoms. I invariably have the same reaction in these cases - I think of Lyme disease and wonder whether they were properly… Continue reading Slipping between the cracks

my story, thoughts

Life without major relapses

It's been about 2 years now since I had a major relapse (meaning weeks and weeks of more severe symptoms). This is huge -- it means that I am willing to take risks like signing up for a work trip, taking on something larger at work, and being more responsible for things at home without a… Continue reading Life without major relapses

treatment

Off antibiotics!

I can't believe it's been over a month since I last wrote in ... I certainly haven't forgotten about this blog or having Lyme disease, but as an academic the beginning of the semester always rolls over me in waves leaving little time to step back and reflect. Fall is especially bad because there are… Continue reading Off antibiotics!

my story, symptoms, treatment

Running the Numbers (Apr/May 2009)

I have entered another two month’s worth of numbers into my stats program and analyzed them. Of note is the fact that I was apparently hyperthyroid in Feb/March (and maybe before that) but went into remission in April. I'm gaining back my weight now, which apparently was caused at least partly by that. I've created… Continue reading Running the Numbers (Apr/May 2009)

my story, symptoms

Running the numbers (March 2009)

I expect this will become an (approximately) monthly post as long as I am still in treatment. I have entered another month's worth of numbers into my stats program and analyzed them. This month is of note because I switched meds half way through --Penicillin was begun March 13th. At that time, Zithromax, Mepron, and… Continue reading Running the numbers (March 2009)