activism, diagnosis, thoughts

Slipping between the cracks

In the last week, I have met or heard about three different cases of younger individuals who either died or were very ill with a combination of diseases that cause neurological and physical symptoms. I invariably have the same reaction in these cases - I think of Lyme disease and wonder whether they were properly… Continue reading Slipping between the cracks

symptoms, thoughts

Relapse #n

Or maybe I should call this YAR (yet another relapse). Who's counting, anyway? This one (maybe) was triggered by international travel and possibly stress. I'm about a week in, and as usual it's both new and the same. Started with night sweats (while still on the trip), transitioned to nausea (new) and dizziness and now… Continue reading Relapse #n

diagnosis, infection, my story, treatment

It had to happen one day…

I love being outdoors, and I love being outdoors with my children and teaching them how beautiful and special nature can be. So I knew that a day would probably come eventually when one of us would be bitten by a tick. My daughter has a morning of wood time every friday and we take… Continue reading It had to happen one day…

doctors-conversations, my story, symptoms, treatment

Back :(.

Although on sabbatical, I'm going to check in with a brief series of posts this month and next. I am in the midst of a relapse (severe night sweats since early january, more recently fatigue, out of breath, headaches and dizziness). After more than two weeks of symptoms that are getting in the way of… Continue reading Back :(.