I'm starting to feel like chronic illness just keeps going and going and going ... I know that's the definition of chronic, but I keep getting my hopes up. I suppose the right thing to focus on is that life goes on too. And for the most part, I do. But this is my space… Continue reading The energizer bunny
I am starting to feel truly lost, mired in the confusion of not my own, but my daughter's invisible, confusing problems. This I know: something is not quite right. I also know: many things are right, more than right. But illness does not define the person, it influences some but not all and sometimes in… Continue reading Lost
I received the news a few weeks ago that my daughter also has lyme disease. Her Igenex labs (Western Blot) were clearly positive, where they had previously been indeterminate. For my son and I, this was never an issue, and so I hadn't read up on it much before (though I was familiar with the… Continue reading … and then there were three
I am on tick watch. I have to keep my eyes open every day, do tick checks on my kids, encourage them to enjoy the outdoors with my heart in my mouth, teach them to be safe without teaching them to be fearful, never completely let my guard down. I am on a trip, to… Continue reading Tickwatch!
I've been meaning to write a post (and answer comments) for a long time now, and life keeps getting in the way. I suppose that's a good thing -- I'm busy because I can be. On the other hand, I'm also busy because I still need more sleep and time to care for myself than… Continue reading June already!
Somebody asked me a few days ago, how I am able to live with and accept the impact of Lyme disease on my life. The resulting conversation helped me achieve a new understanding of what it means to live with a chronic condition. Because Lyme disease is potentially curable, I find myself living with constant… Continue reading Liberating Constraints
My daughter is four, and she is a puzzle to me. She has always seemed so strong, so robust, so determined, so healthy (unlike my son). Yet she also shared the repeated summer time flu and frequent sickness of my son up through January of 2009, after which her health was excellent. Despite this, to… Continue reading So sensitive…