--- update --- After posting the information below I discovered an additional article from 2000 by Stricker & Winger. They evaluated 73 patients with chronic lyme disease. Six of those patients were tested repeatedly over 4 months. They found significant differences between those with chronic lyme, and various comparison groups. This constitutes (I believe) better … Continue reading CD 57
I was hesitant to even write about this experience, because who wants to admit it, but I wasted a lot of time and hope on something that I shouldn't have. The reason I am telling you this is that if you are ill you have probably faced the same temptations I do, and maybe we … Continue reading Drawn in by false hope
I had the privilege of meeting a wonderful infectious disease doctor here in Pittsburgh this week. She treated me as an intelligent person who deserved a say in my own care, and was willing to talk about and even consider the possible value of additional antibiotics. We ran tests to try and verify one or … Continue reading More evidence for antibiotics … and the mold connection
The path to my diagnosis was surprising at the time, though far less so in retrospect. At a time when my doctors were completely at a loss, and I had begun interviewing Massage Therapists to find relief for my symptoms. The third (and final) one that I spoke with suggested that I might have Lyme … Continue reading Diagnosis!
Probably one of the most difficult moments of this whole experience was the morning of October 4th, when I showed up at the hospital to get a CAT scan. After all the paperwork was done and I arrived at the lab, I sat down for the nurse to prep me, and she asked me if … Continue reading CAT Scan, weaning, unweaning …
Shortly before the 9/25 doctors visit described in my next post, I received a phone call from my husband (who was in Australia at the time). He told me that we needed to insist that my doctor start conducting tests and eliminate possible causes of my symptoms, starting with lymphoma. Now, I had actually mentioned … Continue reading My husband insists that we figure this out