This is a blog about my experiences with Lyme Disease. I’ve also written up a short history of these experiences. I created this at the urging of a friend because so little information is available about lyme, and what little there is tends to fall into one of two “camps” that are diametrically opposed to each other. I have spoken to numerous doctors in both camps and done a lot of reading myself, and while I am no expert, my opinions fall somewhere in the center of those two camps. I will do my best to present a balanced view point and provide pointers to resources from both sides so that anyone reading this can draw their own conclusions just as I have.
The tag “lyme-war” will lead you to posts where I specifically describe this controversy. My links page also points at external resources on each side of the wars.
Caveat: I am not a doctor, and nothing written on this site is meant to represent medical advice. I am simply describing my experiences, my opinions and so on. Use at your own risk.
bibomedia said,
March 4, 2008 at 4:05 am
:)
Tara said,
May 8, 2008 at 3:41 pm
Hello! I’ve been reading your blog and am reaching out to tell you about the community around Lyme disease we are building on Trusera.com. The heart of our business is two basic ideas. The first is that it is way too hard for ordinary health consumers to find credible health experiences. This comes directly form our founder’s experience with Lyme, which took eleven doctors (and one email from a friend) to diagnose. You can read Keith’s story here http://www.trusera.com/users/storyguy/stories/the-bite-that-changed-my-life?.
Right now, I am reaching out to leaders and advocates in the Lyme community and would like to talk to you about how you could help spark this resource for those with Lyme. Seems like you are someone who holds our belief in sharing resources and creating access to actionable information.
Please let me know if I can send you an invitation via email to the site.
Warm Regards,
Tara
Mac McDonald said,
December 12, 2008 at 11:32 am
I found your site by tracing a referral to LymeBlog, News and Personal Stories of People with Lyme Disease, from this site. Thank you for the link.
I have created some banner ads linking to this site on LymeBlog. We now have over 5 million readers. I hope this will help more people find you.
Feel free to share your story there in a LymeBlog and include a link back to this site if you wish.
Ann Morris said,
June 7, 2009 at 5:10 pm
I am also not a doctor. My son is setting up a site for me to post my experiences from the last 5 or 6 years. I also had neuro lyme/babesiosis. I thank you for your blog as it will provide me something of a template to present the information in a much clearer manner than I would have otherwise. Thanks, Ann
Penny said,
September 8, 2009 at 5:31 pm
Hi,
I doesn’t look like there are many recent posts, but I just wanted to add my experience. I had Mono to start which sent me into chronic fatigue. My immune system was a mess. My sister who contracted the Epstein Barr(mono) virus 8 years prior, and had her own chronic fatigue story, suggested I be tested for allergies…wow I was allergic to everything! Found some relief from a chiropractor turned nutritionist… And just when I was feeling a bit better, got Lyme…..Symptoms back and I was again not feeling well with fatigue, memory problems, etc, and then had Asthma symptoms setting in…
I have now healed from both Lyme and Chronic Fatigue..as well as seasonal – food- and environmental allergies. My gall bladder attacks a long standing ailment before the immune system crash — is gone! no more asthma, I am one happy person to feel so good again.
It took me about 5 months to rid myself of the Chronic fatigue and Lyme and about another 1 1/2 years to clear up everything else. That was nearly 10 years ago!
I did it through Advanced Cell Training which was so new then it didn’t have a name! And was a one man office. But what a life saver. I just got bitten by a tick again so am going back for a tune-up to get more treatments to be sure I don’t get sick like I was before.
It works. And has worked for my family and friends. If you can think outside the box, (I thought I’d lost my mind to try this.. surprise it worked!) and are willing to try something cutting edge… then this is for you. If you are looking for conventional… please don’t try ACT.
Wishing you the peace that comes with good health!
Lyme Girl said,
November 4, 2009 at 2:15 pm
Hi I am a journalism student and I am currently constructing a blog about Lyme disease. I couldn’t find a way to contact you directly so I hope you don’t mind me leaving my message here. I was wondering if I could ask you a few questions about your blog. I would like to know more about what it is like becoming a public figure with Lyme and what your experience has been having a very public forum to discuss your journey with the disease. If you are interested please e-mail me Lyme.girl@hotmail.com